In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child
(eBook)

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Published
Princeton University Press, 2020.
ISBN
9780691214702
Status
Available Online

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eBook
Language
English

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APA Citation, 7th Edition (style guide)

Myra Bluebond-Langner., & Myra Bluebond-Langner|AUTHOR. (2020). In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child . Princeton University Press.

Chicago / Turabian - Author Date Citation, 17th Edition (style guide)

Myra Bluebond-Langner and Myra Bluebond-Langner|AUTHOR. 2020. In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child. Princeton University Press.

Chicago / Turabian - Humanities (Notes and Bibliography) Citation, 17th Edition (style guide)

Myra Bluebond-Langner and Myra Bluebond-Langner|AUTHOR. In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child Princeton University Press, 2020.

MLA Citation, 9th Edition (style guide)

Myra Bluebond-Langner, and Myra Bluebond-Langner|AUTHOR. In the Shadow of Illness: Parents and Siblings of the Chronically Ill Child Princeton University Press, 2020.

Note! Citations contain only title, author, edition, publisher, and year published. Citations should be used as a guideline and should be double checked for accuracy. Citation formats are based on standards as of August 2021.

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Grouped Work IDc2524f73-0a40-eff4-aa92-f7f3c3a05a2e-eng
Full titlein the shadow of illness parents and siblings of the chronically ill child
Authorbluebond langner myra
Grouping Categorybook
Last Update2024-03-20 23:01:07PM
Last Indexed2024-03-28 03:15:33AM

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First LoadedMar 15, 2024
Last UsedMar 27, 2024

Hoopla Extract Information

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    [synopsis] => "Winner of the 1997 Charles A. Corr Award in Literature" Myra Bluebond-Langner is professor emerita at University College London and Board of Governors Professor of Anthropology Emerita at Rutgers University. She is also the author of The Private Worlds of Dying Children (Princeton), winner of the Margaret Mead Award. 
	A revealing account of how families adapt to living with a chronically ill child

What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion.

The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness-from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives.

Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill. "In the Shadow of Illness is a beautifully written, well-organized book that is an outstanding contribution to our understanding of the impact of chronic illness on the family and the factors that affect the coping mechanisms over the trajectory of chronic illness. An important source of information and understanding for families who find themselves in the shadow of illness."---Kirby Pope, Bulletin of the Menninger Clinic "Myra Bluebond-Langner gives us a framework of understanding how families-siblings as well as parents-move through their understanding of the condition, and their coping strategies, by redefining 'normal' family life to include routine CF care and reassessing their family priorities. She has done this with great skill and sensitivity." "I strongly recommend this book to anyone involved with families of children with CF and potentially with other chronic life-threatening illnesses. There is no question that it provides new and valid insight concerning parent and sibling adaptation." "An important contribution to the ethnography of illness experience. . . .This book will be of great value to researchers and clinicians with interests in how families cope with chronic illness, life-threatening conditions, and genetic disorders."---Joan Ablon, Medical Anthropology Quarterly "This book powerfully illuminates the everyday experience of families living with a chronically ill child."-Patricia A. Marshall, Associate Director of Medical Humanities Program at Loyola University Chicago, Strich School of Medicine
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